Max has been admitted and is now under. The people here at Children's are extremely nice and very forthcoming with what exactly will happen. Max did great. He fell asleep while all the doctors and nurses talked to us about the procedure. Jay Wilson knows his stuff and he said without a doubt in his mind that we will see Max in a few hours.
I am extremely grateful we have a great hospital so close to us that specializes in his condition. Although this condition is short lived as in four hours he won't have it anymore!
Kami is pumping right now and we are settling in to the waiting area. I think it's time for some food.
More to come...
Thursday, February 11, 2010
Wednesday, February 10, 2010
On the books
We got word this afternoon that the surgery will begin tomorrow at 8:45am. It's not the first of the day as we had hoped (which would have meant a smaller chance of delay - something very important when you have a fasting baby!), but it will give us some extra time to make it into Boston should the roads be messy from the storm. We are appreciative for that.
We need to arrive at Childrens by 7:15am and plan to leave Nashua at 6am. We'll have to wake Max for his last feeding in the middle of the night, but I don't mind. I'll take any chance I can get right now to snuggle with my little man.
Off to pack our hospital bags and hopefully get a little sleep while we can...
We need to arrive at Childrens by 7:15am and plan to leave Nashua at 6am. We'll have to wake Max for his last feeding in the middle of the night, but I don't mind. I'll take any chance I can get right now to snuggle with my little man.
Off to pack our hospital bags and hopefully get a little sleep while we can...
We're off to see the wizard...
24 hours from now Max will be in the operating room with the best surgeon for his condition...probably in the world. We find comfort in knowing that people travel from all over the globe to have surgery at Boston Childrens. We really are going to be in the best hands.
Still, it is hard not to let your mind journey into that dark place of 'what ifs'. Staying busy has been the best medicine for nerves.
So what is Max getting operated on, anyway?
Max was diagnosed with a Diaphragmatic Hernia of the Morgagni variety back in September when he was taken to the ER in North Conway for a high fever. He was 2.5 months at the time and we were visiting Storyland with the kids and some good friends. The ER doctor ordered a chest x-ray (among taking blood and other exams) to check for pneumonia. All was clear and they sent us home. Diagnosis was a nasty virus and we figured we were through with hospital visits for a long time. We returned from our vacation to find a voicemail on our machine from the radiologist at the hospital, alerting us that he found something that looked like a hernia in Max's chest (which basically means a hole) and that we should follow up with our local pediatrician immediately. Long story short, the ped ordered a second xray which confirmed the initial conern and sent us directly to Childrens in Boston that week. They assured us that there was no bigger expert than Dr Jay Wilson.
Here is a link that explains Max's condition and how they fix it:
http://www.childrenshospital.org/az/Site741/mainpageS741P0.html
We are beyond fortunate that Max has the Morgagni variety and that this was not a life threatening situation. Dr. Wilson did, however, recommend getting it repaired as there is a risk of a bowel obstruction (which can cause death if not treated immediately).
While I wish I had time and know it would be extremely therapeutic to type out all of my fears, my concerns...and hopes - life has other plans. Right now I need to get one child fed and one dressed and off to school. Valentines Day isn't postponing itself either, so we have heart shaped crayons in the oven and paper and markers ready to go. We have boo boos to care for (Maya just stubbed her toe), diapers to change...and it may be beneficial for me to shower for the first time in 3 days!
We'll be updating this site from the hospital as we are told they have Wi-fi. We wanted to start this blog as so many have asked for updates and we figured this was the best way to keep them all in one place. Check back often and please think of Max...
Still, it is hard not to let your mind journey into that dark place of 'what ifs'. Staying busy has been the best medicine for nerves.
So what is Max getting operated on, anyway?
Max was diagnosed with a Diaphragmatic Hernia of the Morgagni variety back in September when he was taken to the ER in North Conway for a high fever. He was 2.5 months at the time and we were visiting Storyland with the kids and some good friends. The ER doctor ordered a chest x-ray (among taking blood and other exams) to check for pneumonia. All was clear and they sent us home. Diagnosis was a nasty virus and we figured we were through with hospital visits for a long time. We returned from our vacation to find a voicemail on our machine from the radiologist at the hospital, alerting us that he found something that looked like a hernia in Max's chest (which basically means a hole) and that we should follow up with our local pediatrician immediately. Long story short, the ped ordered a second xray which confirmed the initial conern and sent us directly to Childrens in Boston that week. They assured us that there was no bigger expert than Dr Jay Wilson.
Here is a link that explains Max's condition and how they fix it:
http://www.childrenshospital.org/az/Site741/mainpageS741P0.html
We are beyond fortunate that Max has the Morgagni variety and that this was not a life threatening situation. Dr. Wilson did, however, recommend getting it repaired as there is a risk of a bowel obstruction (which can cause death if not treated immediately).
While I wish I had time and know it would be extremely therapeutic to type out all of my fears, my concerns...and hopes - life has other plans. Right now I need to get one child fed and one dressed and off to school. Valentines Day isn't postponing itself either, so we have heart shaped crayons in the oven and paper and markers ready to go. We have boo boos to care for (Maya just stubbed her toe), diapers to change...and it may be beneficial for me to shower for the first time in 3 days!
We'll be updating this site from the hospital as we are told they have Wi-fi. We wanted to start this blog as so many have asked for updates and we figured this was the best way to keep them all in one place. Check back often and please think of Max...
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